Gabby's Journey Through Craniosynostosis

Friday, February 20, 2009

Never Ending


Poor Gabby did not get lucky today. I was hoping that the pediatric opthamologist (sp?) was going to give us great news on Gabby's eyes, but not so much. Ever since she was really little she kind of cocks her head a little when she looks at things. The more research I have done on coronal craniosynostosis the more I have found out how common this is. It is usually diagnosed as strabisimus and requires surgery to correct. We saw Dr. Ruttum today. He is with Children's Hospital in Milwaukee too, but comes up to Green Bay once a month. Alex actually see's him too. Anyway, he said that Gabby is showing the classic eye issues of a coronal baby. She cocks her head to aliegn her eyes. He said this is actually good in that she is using both eyes and her vision seems to be fine. This is most probably going to have to be corrected through eye surgery to fix one or two of the eye muscles. When she looks to her left, her right eye goes up rather than going left like it should. Dr. Ruttum said this is because one muscle is stronger than the other and it pulls her eye up. He said he would not do surgery until he knows for sure this is the problem and he needs her to get a little older to be able to do more measuring of her eye and other tests that she would need to hold still for. I asked about whether her reconstructive surgery could fix this and he said it is possible so we just need to wait and see. She will go back to see him in 6 months. Hopefully she will be able to escape another surgery. Is it weird that I cannot even get upset about the eye issue and surgery. It is like nothing will surprise me any more. I guess I kind of knew that she was going to have to have it corrected. This little peanut will be one strong cookie when she is through with all this medical stuff.

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